Skip to main content

Welcome to Darnall Medical Library: Data Management

Providing quality information and services to support the readiness and care of the Uniformed Services and their families.

Research Data

Research Data Management Initiative helps WRNMMC researchers with managing research data by offering the research lectures about the data-driven research, data intellectual property rights, data protection, ethics and policies, research data management, research data management tools, and research data visualization. Consultations and guidance on writing the Data Management Plan for DoD grants are also offered for WRNMMC researchers.    

If you have questions about the research data management and DMP writing for DoD grants, contact  informationist, Dr. Tmanova.

Research Data

Research data is defined as the recorded factual material commonly accepted in the scientific community as necessary to validate research findings, but not any of the following: preliminary analyses, drafts of scientific papers, plans for future research, peer reviews, or communications with colleagues. This 'recorded' material excludes physical objects (e.g., laboratory samples).

2 CFR 200.315 (e), continuing the definition from 2 CFR 215 (OMB Circular A-110)

Data Management Plan

Data Management Plan (DMP) is a formal document that describes the research data obtained during the intramural and extramural research, intellectual property rights, policies for access and sharing of the research data, policies for re-use, redistribution, derivatives, and plans for archiving and preservation of research data.  

DoD Data Management Plan (DMP) is required for each new research activity

  • Is a part of the research project and/or grant proposal
  • Includes the description of anticipated publicly releasable and limited data sets and plans for retention and access
  • DMP should be submitted to DTIC at the beginning of the research project
  • Preservation data sets are evaluated by subject matter expert within the discipline
  • Excluded data from public release are national security, economic security, export control, proprietary information, personally identifiable information and economic cost/benefit

Adapted from the DTIC  webinar presentation “Public Access: How does it affect me?" Collins, A., February 2017.
Public Access to the Results of Department of Defense-Funded Research. 
White House Office of Science and Technology Policy memorandum, "Increasing Access to the Results of Federally Funded Scientific Research," February 22, 2013. 

DoD Plan to Establish Public Access to the Results of Federally Funded Research. February, 2015

Data Protection and Ethics

  • Data Protection Law – security and electronic transmission of personal data
  • Data Protection Directive (Directive 95/46/EC)
  • Health Insurance Portability and Accountability Act 
  • OECD - Working Party on Information Security and Privacy 
  • General Data Protection Regulation, 2016
  • United States Privacy Act
  • US, EU and Swiss Safe Harbor Frameworks
  • Guidelines on the Protection of Privacy and Transborder Flows of Personal Data The Organization for Economic Co-Operation and Development, last modified 5 January 1999.
  • Code of ethics for research in the social and behavioral sciences involving human participants
  • Data privacy in genomic research 

Selected Books

Data Analysis

Data gathered during a research experiments can be analyzed using statistical software, graphical tools, and programming language. Many of these tools are freely available for download from open sources. SPSS is available upon request from the WRNMMC Department of Research Programs. 

Selected Research: Data, Ethics, and Society

Crawford, Kate and Jacob Metcalf. 2019. “Where are Human Subjects in Big Data Research? The Emerging Ethics Divide.” Council for Big Data, Ethics, and Society. Accessed October 10, 2019. 

Kramer, A. D., Guillory, J. E., & Hancock, J. T. (2014). Experimental evidence of massive-scale emotional contagion through social networks. Proceedings of the National Academy of Sciences111(24), 8788-8790.

Editorial Expression of Concern: Experimental evidence of massive scale emotional contagion through social networks. (2014). Proceedings of the National Academy of Sciences, 111(29), 10779.

Editorial Expression of Concern and Correction. Psychological and cognitive sciences

Poor, Nathaniel and Roei Davidson. 2019. “Case Study: The Ethics of Using Hacked Data: Patreon’s Data Hack and Academic Data Standards.” Council for Big Data, Ethics, and Society. Accessed October 10, 2019

Mehlman, M. J., & Li, T. Y. (2015). Ethical, legal, social, and policy issues in the use of genomic technology by the US military. Case Western Reserve Journal of International Law47, 115.

Mehlman, M. J., & Li, T. Y. (2014). Ethical, legal, social, and policy issues in the use of genomic technology by the US Military. Journal of Law and the Biosciences1(3), 244-280.

Metcalf, Jacob, Emily F. Keller, and Danah Boyd. 2019. “Perspectives on Big Data, Ethics, and Society.” Council for Big Data, Ethics, and Society. Accessed October 10, 2019. 

Norrgard, K. (2008). Ethics of genetic testing: medical insurance and genetic discrimination. Nature Education1(1).

Otlowski, M. F., Taylor, S. D., & Barlow-Stewart, K. K. (2003). Genetic discrimination: too few data. European Journal of Human Genetics11(1), 1.

Ursic, Helena. 2019. “The Right to be Forgotten or the Duty to be Remembered? Twitter data reuse and implications for user privacy.” Council for Big Data, Ethics, and Society. Accessed October 10, 2019. 

Darnall Medical Library | Walter Reed NMMC | Building 1, Room 3458 | 8955 Wood Road | Bethesda, MD 20889 | 301-295-1184/85 | Open Monday-Friday, 0700-1730

After-hours access to the library is available to WRNMMC Staff via the CDO at 301-295-4611.